Great News!
The MBC Wales campaign website will be moving to
the main METUPUK site within a few weeks time. It has been a very busy but exciting year, and I cannot wait to share the progress we have all made working together.
The MBC Wales campaign will finally be able to take it's place as one of the four nations in the UK, all of us working together.
I will still be managing the progress within Wales but it will be under my new focus as 'executive lead for Wales' under METUPUK.
Have you considered being a patient advocate and political activist?
Are you passionate about making real change in Wales and the rest of the UK for patients with Metastatic Breast Cancer?
If so, please contact myself through email tassia.haines@metupuk.org.uk
and I will get back to you as soon as I can.
Ongoing work
Petition committee correspondence with the Health Minister and petitioner. (In reverse chronology)
Petitions committee meeting 15th May 2023
The Committee considered the petition and agreed to ask the Minister to respond to the comments and questions received from Tassia and encourage the Minister to meet with Tassia who has campaigned tirelessly on behalf of metastatic breast cancer patients.
Petitions committee meeting 6th February 2023
Click here to watch or for transcript
Item 3.8 outcome - The Committee considered the petition and agreed to write to the Minister for Health and Social Services seeking an update on the Wales Cancer Network meeting which took place in January and to ask for further clarification on some key issues raise. The Committee also noted that the petitioner has inspired them as she fights for better support for others, like her, who develop metastatic breast cancer, despite her own health challenges
Petitions committee meeting 7th November 2022 Click here to watch or for transcript
Item 3.2 outcome - The Committee considered the petition and agreed to write back to the Minister asking her to address some unanswered questions arising from the plenary debate.
The petition was debated at the Senedd 19th October 2022.
If you would like to watch it take place or would like to read the transcript click here
To see the Plenary agenda and papers click here
The two sides before the debate:
Petitions committee 10th October 2022
Tell me about the dragon!
But here's the thing....
I am nowhere near done yet.
I had a pretty rough time of it, and to my naive surprise I have found my horrendous experiences are not exclusive to my personal hell. I have met and have spoke to be people all over Wales who also have stage 4 breast cancer, and just like me, they have felt/feel unsupported.
Like many other people in the UK, I receive painful, temporary treatment to control my cancer and live from scan report to scan report. Every month I wait to see if I will likely live the month ahead. If this sounds like a nightmare, you'd be right, although what if I were to say this is a fraction of the worries us patients have to face. We are sick and sick of being silent!
I have set up this page to host a crucial grass roots campaign and hope that other outspoken patients will join me, so we can organise and put pressure where it needs to be!
Apathy kills more than direct action. so we need to take direct action on apathy, and that goes all the way up to the government
If you would like to know more about me, please consider checking out my personal blog.
I am a proud member of METUPUK and work with them daily to improve the profile of metastatic breast cancer in the UK.
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